Mostly bedbound with long COVID, much better after breathwork and calming nervous system
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I'm a 31F who first came down with Long Covid in 2020.
In context ↗ - At worst: Severe
At my worst, I was mostly bedbound, as in could go downstairs but it would take effort. Couldn't cook my own meals.
In context ↗ - Now: Much better
so I'd say maybe 70% recovered. I'm honestly living a really full happy life!!
In context ↗ - Began after: COVID
I'm a 31F who first came down with Long Covid in 2020.
In context ↗
Read from 14 of their posts and comments; links to the 6 this page draws on
Summary
A 31-year-old woman fell ill with long COVID in 2020: chest pain, POTS, severe PEM and pain left her mostly bedbound and back with her parents. She credited calming her nervous system, yoga nidra, breathwork, acupuncture and mindset, with electrolytes and propranolol easing symptoms; ivabradine, LDN, mestinon and graded exercise did not help. By 2026 she was 70-80% recovered and working remotely, but still avoided intense exercise and heat.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN · No change
I did try LDN and did not see a huge difference.
In context ↗ - Cardiac Rehab/ Graded Exercise Therapy · No change
Cardiac Rehab/ Graded Exercise Therapy
In context ↗ - Vagus Nerve Stimulator · No change
Vagus Nerve Stimulator
In context ↗ - Heart rate pacing · Worse
Heart rate pacing (made me overly focused, too anxious)
In context ↗ - Electrolytes · Helped
Electrolytes--sometimes chugging 2 packets in ice water really makes me feel better.
In context ↗ - Propranolol · Helped
Propranolol for heart rate
In context ↗ - Vitamin D · No change
Vitamin D and B-Complex just to ensure I don't have deficiencies, but they didn't help PEM per se.
In context ↗ - Compression socks · Helped
Compression socks for days I walk a lot
In context ↗ - Nervous system work · Helped a lot
NERVOUS SYSTEM WORK! Ie, not being scared of my symptoms
In context ↗ - Reading stories of recovery · Helped
Reading stories of recovery
In context ↗ - Acupuncture · Helped
I did acupuncture for a year with an amazing healer. That always made me feel good.
In context ↗ - Yoga Nidra/ Breathwork · Helped
Yoga Nidra/ Breathwork regularly
In context ↗ - Mindset · Helped
Mindset--focusing on things I can do rather than things I can't do.
In context ↗ - Moving out of a city and being in nature · Helped
slowing down my whole life and moving out of a city. Being in nature, however possible, has been extremely healing.
In context ↗ - GLP · Not said
I also started a GLP last month for weight related issues and it's been going ok so far!
In context ↗ - Prozac · Helped
Medication Wise: Prozac, GLP microdosing, and Propranolol.
In context ↗ - Ativan · Helped
Ativan when I have a "crash" as an abortive.
In context ↗ - Fresh juices · Helped
At my worst, fresh juices in the morning really helped, maybe the big dose of antioxidants!
In context ↗
Approaches: CBT & mindset · SSRIs · Alternative therapies · Brain retraining · Mind-body practices · Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | Long COVID onset with chest pain and cardiac inflammationIt started with chest pain, which eventually led to me being diagnosed with cardiac inflammation.In context ↗ | Moderate |
| 2021 | mostly bedbound, then homebound; had to give up her apartment and go on sick leaveAt my worst, I was mostly bedbound, as in could go downstairs but it would take effort. Couldn't cook my own meals.In context ↗ | Severe |
| 2023 | gradual improvement after nervous system work, yoga nidra, breathwork and acupunctureI never woke up and was good, I just was able to look back and see that I was doing more this month than last month, and less days feeling bad overall.In context ↗ | Moderate |
| 2026-06-24 | about 70-80% recovered, working remotely and travelling, but no intense exercise and heat intolerance remainI'm pretty pain and fatigue free on a daily basis ... basically living a normal life including international travel, partying, socializing, and working remotely | Mild |
Adverse events
- Pacing and the energy envelope“Heart rate pacing (made me overly focused, too anxious)” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I then started to get really bad PEM and crashed
In context ↗ - Heart symptoms & palpitations
chest pain constantly
In context ↗ - POTS & dysautonomia
Really high heart rate upon standing, light headedness
In context ↗ - Pain & fibromyalgia
my whole body would be in pain
In context ↗ - Neuropathy & tingling
I'd feel acid burning through my legs
In context ↗ - Flu-like symptoms
swollen lymph nodes after activity and mouth sores
In context ↗ - Anxiety & low mood
I also used to get really down, anxious, and depressed when I had a new symptom or bad flare
In context ↗ - Temperature regulation
heat intolerance
In context ↗
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