Barely able to speak or lift her head with long COVID; supplements helped, then relapse
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I am also on a LC supplement protocol.
In context ↗ - At worst: Severe
Indescribable fatigue. Could barely speak or lift my head.
In context ↗ - Now: Relapsed
I was 80-90% functioning before, now I sleep and read all day and my big achievements are emptying the DW
In context ↗ - Began after: COVID
After covid I feel like a shadow of myself most of the time
Read from 30 of their posts and comments; links to the 22 this page draws on
Summary
A 62-year-old US woman developed long COVID in 2022; she could barely speak or lift her head, with migraines, dizziness, tingling, fibromyalgia pain and crashes. Cortisone shots, monthly B12, CoQ10, vitamin D, magnesium and later B1 and B2 took her to about 80-90% functioning by mid-2025. A stressful six-week trip to France then set her back to sleeping and reading all day. Nattokinase helped after adjustment; loratadine made her very sick.
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What they tried
What they credit
Also tried
Their words about each treatment
- acupuncture · Helped
I do acupuncture and a strict supplement regimen that gets adjusted on a regular basis.
In context ↗ - Andrographis from MediHerb · Helped
Andrographis from MediHerb (standard process) is my go- to at the first onset of any flu/ cold symptoms
In context ↗ - Echinacea C · Helped
Echinacea C helps me greatly when I have flare ups
In context ↗ - melatonin · Helped
For the jet lag I use melatonin .5 mg befor going to sleep at a normal hour for the destination. It help greatly.
In context ↗ - DHEA · Helped a lot
Starting at 25mg and slowly increasing to 75mg. It made a HUGE difference as all my hormones got back to normal levels
In context ↗ - coq10 (ubiquinol) · Helped a lot
the coq10 gave me my energy back
In context ↗ - Vitamin d3 · Helped
What helps me is high doses of D.
In context ↗ - Vitamin k2 · Not said
Recently I added b2 b1 and k2
In context ↗ - Vitamin b1 · Helped a lot
the b1 vitamin is spectacular. It gave me my optimism back.
In context ↗ - Nattokinase · Helped
first two days I felt amazing. No migraines and no brain fog. Today (day 3) I woke up with all the symptoms of low blood pressure.
In context ↗ - Magnesium threonate · Helped
Magnesium threonate
In context ↗ - Magnesium glycinate · Helped
What helps me is high doses of D. And also magnesium glycinate.
In context ↗ - B12 shots · Helped a lot
the stuff that got me out of bed were a cortisone shot (initially) and monthly b12 shots
In context ↗ - cortisone shot · Helped a lot
initially it’s a cortisone shot that got me out of that pit
In context ↗ - iron · Not said
iron at some point
In context ↗ - MSM · Not said
I also take MSM for the joint inflammation
In context ↗ - CBD gummies · Helped
CBD gummies are also helpful.
In context ↗ - Ubrelvy · Helped a lot
Ubrelvy. If you are in the US you can get it for free on their program. It saved my live from nightmare migraines that struck every single day.
In context ↗ - Vitamin b2 · Helped a lot
b2 and b1 have done absolute wonders. I am down to maybe once a week migraines.
In context ↗ - Aspirin · Worse
Aspirin makes me worse.
In context ↗ - cranberry / D-mannose / aloe vera gel pills · Not said
I am on strict cranberry/ dmanose/ aloe Vera gel pill regimen with lots of water
In context ↗ - natural antihistamine herb and probiotic combo · Not said
I also just got a new supplement that’s a natural antihistamine. An herb and probiotic combo.
In context ↗ - myofascial release therapy · Helped a lot
The only thing that cured it was aggressive myofascial release therapy. It was amazing.
In context ↗ - antihistamines · Helped
I did notice some improvement after taking antihistamines.
In context ↗ - Loratadine · Worse
I tried going the traditional antihistamine route ( Loratadine) but it made me very sick ( chest pains), restless
In context ↗ - Antibiotics (unspecified) · Not said
It took forever to get rid of it and some antibiotics made me so sick…
In context ↗
Approaches: H1 antihistamines · Hormones & thyroid · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | long COVID onset; bedridden and barely able to speakIndescribable fatigue. Could barely speak or lift my head.In context ↗ | Severe | |
| 2022 | got out of the worst of itinitially it’s a cortisone shot that got me out of that pitIn context ↗ | Moderate | Corticosteroid pulses |
| fall 2024 | three weeks of feeling practically back to normalin the fall of 2024 I had 3 whole weeks of feeling practically back to my old normal selfIn context ↗ | Near normal | |
| fall 2024 | relapse after three weeks of near-normalwhat caused the relapse, I’ll never knowIn context ↗ | Not stated | |
| 2025-05-16 | about 80% recoveredI am 80% recovered after 3 years of roller coasterIn context ↗ | Mild | Vitamin B12 |
| 2025-06-28 | 90% recovered, strength backI am now 90% recovered and my strength is back ( I can lift, pull, pick up etc)In context ↗ | Near normal | Corticosteroid pulses |
| 2025-07-12 | relapse after stressful six-week trip to FranceRight now I am experiencing daily crashes and fibromyalgia pain and this constant vibration stuffIn context ↗ | Moderate | |
| 2025-07-18 | symptoms out of control; sleeps and reads all daynow I sleep and read all day and my big achievements are emptying the DWIn context ↗ | Severe |
Adverse events
- Nattokinase“Today (day 3) I woke up with all the symptoms of low blood pressure. Massive headache and feeling quizzy … another supplement I do not tolerate…” In context ↗ Low blood pressure or fainting
- Aspirin“Aspirin makes me worse.” In context ↗ Made symptoms worse
- “I tried it. The smallest possible dose and it felt as if my head was going to explode and my eyes pop out of my skull… never again…” In context ↗ Side effects
- Antibiotics (unspecified)“It took forever to get rid of it and some antibiotics made me so sick…” In context ↗ Side effects
- Loratadine (Claritin)“I tried going the traditional antihistamine route ( Loratadine) but it made me very sick ( chest pains), restless…” In context ↗ Side effects
- Thiamine / benfotiamine“I had to adjust and tweak the b1 and Nattokinase because they both lower your blood pressure” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Their words about their symptoms
- Brain fog
Terrible panic attacks, depression , brain fog, phantom smells
In context ↗ - POTS & dysautonomia
Constant dizziness and migraines
In context ↗ - Heart symptoms & palpitations
Heart rate all over the place
In context ↗ - Pain & fibromyalgia
it’s fibromyalgia gone wild with LC
In context ↗ - Headaches & migraine
LC ha brought my migraines to a new level
In context ↗ - Muscle weakness
Could barely speak or lift my head
In context ↗ - Neuropathy & tingling
Weird vibrating and tingling all over my body
In context ↗ - Anxiety & low mood
Terrible panic attacks, depression
In context ↗ - Loss of smell or taste
familiar comforting smells ( I can smell again
In context ↗
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