Long COVID
Mild → near normalIll 9 months before improving or writing
Long COVID with POTS and gut symptoms, close to normal after metoprolol and trazodone
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 9 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
I'm four months in, had Covid at the end of November
In context ↗ - At worst: Mild
I work part time in a hospital ... I'm definitely not as bad off as some people here.
In context ↗ - Now: Near normal
I'm on the mend, at least at 95% back to where I was since my first infection in November of 2020
In context ↗ - Began after: COVID
had Covid at the end of November
In context ↗ - Says they never had: Post-exertional malaise
I'm one of the lucky ones that doesn't experience PEM
Read from 92 of their posts and comments; links to the 39 this page draws on
- Mar 2021
- Apr 2021
- Jul 2022
- May 2021
- Jun 2021
- Feb 2021
- Jun 2021
- May 2021
- Apr 2021
- Apr 2021
- Apr 2021
- Mar 2021
- Aug 2021
- May 2022
- Jan 2022
- Jul 2022
- Jan 2022
- Jul 2022
- Jan 2023
- Jun 2022
- Oct 2021
- Mar 2021
- Apr 2021
- Feb 2021
- Apr 2021
- Oct 2021
- Nov 2021
- May 2021
- Jun 2021
- Aug 2021
- Jan 2022
- Jan 2023
- Jun 2022
- Oct 2021
- Nov 2021
- Sep 2021
- Oct 2021
- Mar 2021
- Nov 2021
Summary
Marsh 22180 caught COVID in November 2020; at around five months they were working part-time in a hospital with insomnia, POTS, tachycardia, IBS and throat symptoms. Metoprolol and low-dose trazodone, plus time, took them to about 90-95% of normal by eight months. An Omicron reinfection in January 2022 flared POTS and gut symptoms for roughly five months. By January 2023 they flared mainly before their period.
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What they tried
What they credit
Also tried
melatonin gummies· Helpedmagnesium citrate· Helpedl-theanine· HelpedHeadspace app· HelpedXyzal· Helpediron tablets· Helpedmetformin· Helpedlow carb, low sugar diet· Helpedlow carb, low sugar diet· Helpedbee propolis· No changePfizer vaccine· No changeflu shot· No changeVitassium· WorseAfrin· Worseelliptical exercise· WorseNuun tablets· Not saidMontelukast· Not saidvitamin d· Not saidvitamin c· Not saidzinc· Not saidquercetin with bromelain· Not saidb12· Not saidcoq10· Not saidfish oil· Not saidbaby aspirin· Not saidibuprofen· Not saidnaratriptan· Not saidfioricet· Not saidrest / avoiding exercise· Not said
Their words about each treatment
- beta blocker (metoprolol) · Helped a lot
honestly getting on a beta blocker helped me the most in regards to my hrv
In context ↗ - trazodone · Helped a lot
Low dose trazodone was the best solution for my sleep issues honestly.
In context ↗ - melatonin gummies · Helped
The sleep is improving somewhat if only because I'm using 3mg melatonin, l-theanine and magnesium.
In context ↗ - Vitassium · Worse
I was taking Vitassium alongside my beta blocker and recently I decided to stop taking it. I noticed my heart rate and sleep actually improved a lot once I did.
In context ↗ - Nuun tablets · Not said
I've been using Nuun tablets 3x a day, I really like them and they're very convenient.
In context ↗ - Headspace app · Helped
I've actually been using the Headspace app a whole lot, especially the sleepcasts. Highly recommend.
In context ↗ - Montelukast · Not said
I was already taking Montelukast when I got sick so...
In context ↗ - bee propolis · No change
I was taking bee propolis before I got Covid, so I haven't seen much difference with it.
In context ↗ - Xyzal · Helped
I'm taking Xyzal and that's working p well, but I took a daily antihistamine before covid anyway
In context ↗ - kefir, saurkraut and Culturelle probiotic · Helped
Thanks to probiotics and probiotic foods like kefir and saurkraut, etc, but it still took at least 6-7 months to see any improvement.
In context ↗ - iron tablets · Helped
Started taking iron tablets and haven't gotten a cold since.
In context ↗ - metformin · Helped
What helped best for me was getting on metformin and spironolactone.
In context ↗ - vitamin d · Not said
I dunno how much vitamins helped (baby aspirin/vitamin d and c, zinc/quercetin with bromelain/fish oil supplements with coq10/b12 etc) but I like to think they played a part.
In context ↗ - ibuprofen · Not said
as well as electrolytes, baby aspirin, fish oil, and ibuprofen as needed
In context ↗ - low carb, low sugar diet · Helped
low carb, low sugar diet worked for me for energy levels.
In context ↗ - naratriptan · Not said
Came off of fioricet and take a naratriptan for my migraines.
In context ↗ - Afrin · Worse
I'm pretty sure that was because I was using Afrin.
In context ↗ - Pfizer vaccine · No change
I got all three Pfizer shots while long hauling and it didn't make me worse
In context ↗ - flu shot · No change
Got my flu shot on Monday, got really tired and sore by nightfall with increased HR/drop in HRV.
In context ↗ - elliptical exercise · Worse
The last time I had a bad bout of insomnia was after pushing myself a little too hard on the elliptical
In context ↗ - rest / avoiding exercise · Not said
I've been hesitant to start any exercise
In context ↗
Approaches: Beta-blockers · Hormones & thyroid · Other antidepressants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2020 | COVID-19 infectionhad Covid at the end of NovemberIn context ↗ | Mild | |
| March 2021 | last really bad flare-upMonth 4 was honestly my last really bad flare upIn context ↗ | Mild | |
| March 2021 | sleeping on her own without melatoninI've been able to sleep on my own without using melatonin for the past couple weeks at any time.In context ↗ | Mild | |
| April 2021 | insomnia relapse, back on melatonin and doubled beta blockerI had a relapse a couple weeks ago so I'm back on the melatonin gummiesIn context ↗ | Mild | |
| May 2021 | doing much better on metoprolol and trazodoneI'm doing much better thanks to metoprolol and trazodone, not to mention time.In context ↗ | Mild | Trazodone (Desyrel) |
| June 2021 | adrenaline surges and lost sleep after a bad coldI started getting the adrenaline surges again and I barely got any sleep.In context ↗ | Mild | |
| August 2021 | essentially back to normal apart from chest sensations and headachesI'm personally almost 8 months in and am essentially 90-95% back to normalIn context ↗ | Near normal | Trazodone (Desyrel) |
| January 2022 | Omicron reinfection flare of POTS and IBSit seems my POTs is back to being rather noticeable, as well as return of IBS issuesIn context ↗ | Mild | |
| July 2022 | back to about 95% of her old selfI'm on the mend, at least at 95% back to where I wasIn context ↗ | Near normal | Trazodone (Desyrel) |
| January 2023 | flares only before her period or when sickReally the only time I flare these days though, unless I get sick.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“the second shot had me out of commission for the whole next day. I was extremely nauseous and dizzy and I could barely get any food down for two days” In context ↗ Side effects
- Levocetirizine (Xyzal)“Yeah the couple times I had to stop taking Xyzal for allergy testing this happened.” In context ↗ Withdrawal problems
- Salt, electrolytes and fluids“I noticed my heart rate and sleep actually improved a lot once I did. ... the high salt intake was actually making my HR more wonky?” In context ↗ Made symptoms worse
- Flu vaccine“Got my flu shot on Monday, got really tired and sore by nightfall with increased HR/drop in HRV. Rough night of sleep, but I felt pretty much back to normal by the end of the 2nd day.” In context ↗ Side effects
- COVID vaccination as treatment“Throughout the day I had body aches, a migraine, nausea, tachycardia and fatigue.” In context ↗ Side effects
- Oxymetazoline nasal spray (Afrin)“Both times for a brief period I had a very muted sense of taste/smell. Though, I'm pretty sure that was because I was using Afrin.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Sleep problems
my sleep gets worse
In context ↗ - POTS & dysautonomia
Its very manageable, but definitely still there.
In context ↗ - Heart symptoms & palpitations
my only real remaining symptom is tachycardia/not quite POTS which is well managed with a beta blocker
In context ↗ - Gut problems
I was diagnosed with post viral IBS after they tested for everything.
In context ↗ - Headaches & migraine
weird chest sensations and migraine/pressure headaches here and there
In context ↗ - Breathlessness
I still can feel SOB due to palpitations
In context ↗ - Anxiety & low mood
Yeah after getting on a beta blocker and trazodone for sleep this eventually went away
In context ↗ - Hair loss
I've been having hair loss since I recovered.
In context ↗ - Loss of smell or taste
I got mine back within the first two weeks of acute infection
In context ↗ - Pain & fibromyalgia
Had intense neck pain for a few weeks that has subsided
In context ↗ - Mast cell (MCAS) & allergies
I have a dust mite/pollen allergy tho
In context ↗
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