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Long COVID Moderate → somewhat betterIll 2 years before improving or writingNeeds ongoing treatment

Long COVID with panic attacks and BP drops, somewhat better after Paxil and therapy

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Aug 2023
In their words
  • Condition: Long COVIDmy therapist highly believes I was experiencing long covid the whole time In context ↗
  • At worst: ModerateI stopped driving, couldn't stay home by myself (27 years old), couldn't go into a grocery store and many other things In context ↗
  • Now: Somewhat betterEvery once in a while, my BP will drop suddenly. I haven't quite figured out what triggers it but for the most part, I am better. In context ↗
  • Began after: COVIDExactly one month after being diagnosed with the delta strain
Read from 19 of their posts and comments; links to the 12 this page draws on

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Summary

They developed long COVID in October 2021, a month after a mild delta infection, with panic attacks, palpitations, tingling and sudden blood-pressure drops. They stopped driving and missed weeks of work. Paxil, therapy, vitamin D, an antihistamine and TAT sessions slowly helped, and a second infection in 2022 may have eased symptoms. By August 2023 they were mostly better, still on Cymbalta and an antihistamine with occasional BP drops.

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What they tried

Their words about each treatment
  • antibiotics · Not saidI was treated with antibiotics and the monoclonal antibody injections. In context ↗
  • weed · WorseI was able to smoke during covid, it helped me sleep ... when LC hit a month later, I had major anxiety/panic attacks when I would take the smallest hit. In context ↗
  • D8 · WorseI had been trying D8 before I quit everything cause I had less anxiety and paranoia with the D8 but I couldn't use it either after LC hit. In context ↗
  • Paxil · Helped a lotDoc put me on Paxil (Paroxotine) which has helped me immensely In context ↗
  • therapy · HelpedI slowly was able to get my life back (for the most part) after getting on medication, therapy and seeing many specialists. In context ↗
  • Magnesium · HelpedI can control the palpitations with Magnesium. In context ↗
  • compression socks · Not saidI had to wear compression socks for 2-3 weeks. In context ↗
  • caffeine elimination · HelpedI stopped drinking anything with caffeine in it and felt better. In context ↗
  • Wellbutrin · Worsethey prescribed me wellbutrin to help loose weight and quit smoking but I did not do well on the wellbutrin at all! In context ↗
  • peppermint oil · HelpedI carry peppermint oil around with me every where I go to put under my nose In context ↗
  • deep breathing · Helpedpractice deep breathing which seems to help some In context ↗
  • olives and salting food · HelpedI started eating a few olives before bedtime to help keep my BP elevated and it really seems to help. In context ↗
  • TAT therapy · HelpedI would recommend finding a therapist that specializes in TAT. This method helped me with things that I struggled with even before long covid. In context ↗
  • vitamin D · HelpedI take 20mg Cymbalta for the anxiety, vitamin D and an antihistamine every day. In context ↗
  • antihistamine · Helpedallergy meds or antihistamines may have helped some with inflammation related to LC anxiety In context ↗
  • vagus nerve stimulation · Not saidvagus nerve stimulation (can also be done with a chiropractor that uses a laser) In context ↗
  • 428hz healing frequency music · Not said428hz healing frequency music In context ↗
  • Cymbalta · HelpedI take 20mg Cymbalta for the anxiety In context ↗

Approaches: CBT & mindset · H1 antihistamines · SNRIs · SSRIs · Diet · Mind-body practices · Supplements · Trauma & somatic work

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
September 2021Mild COVID (delta); recovered in 14 days and returned to workI had covid back in September 2021, mildish symptoms In context ↗Mild
October 2021Long COVID began: panic attacks, ER visits, stopped drivingin October, exactly one month from being diagnosed with covid, I started having extremely weird symptoms again In context ↗Moderate
February 2022Anxiety attacks returned and they missed workI missed 2 more weeks of work because of them In context ↗Moderate
May 2022Slow improvement on Paxil and therapyI'm still not 100% but possibly getting better veeerry slowly In context ↗Mild
July 2022No spells since recovering from second COVIDI had my second round of covid a few weeks ago and feel like things may be getting better In context ↗Mild
January 2023Slowly got their life back with medication, therapy and specialistsI slowly was able to get my life back (for the most part) after getting on medication, therapy and seeing many specialists In context ↗Mild
August 2023Mostly better on daily medication, occasional sudden BP dropsfor the most part, I am better In context ↗Mild

Adverse events

  • Cannabis (THC, marijuana)“when LC hit a month later, I had major anxiety/panic attacks when I would take the smallest hit. ... I had less anxiety and paranoia with the D8 but I couldn't use it either after LC hit.” Mood or psychiatric effects
  • Paroxetine (Paxil)“I'm on an anti anxiety medication (which has made me gain 30 lbs since November 😭) ... I gained 30+ lbs after just a few short months of being on it” Other
  • Paroxetine (Paxil), Bupropion (Wellbutrin)“I did not do well on the wellbutrin at all! My anxiety attacks came back and I was so sick, so I swapped back to Paxil.” In context ↗ Mood or psychiatric effects

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI started having horrible anxiety attacks 1 month after contracting delta In context ↗
  • Heart symptoms & palpitationsI did develop heart palpitations and my blood pressure was dropping significantly at times In context ↗
  • POTS & dysautonomiaI would wake up in the middle of the night with my heart racing, clammy hands and feet, and dizzy/foggy feeling In context ↗
  • Neuropathy & tinglingtingling in my hands and feet and heart palpitations came back worse In context ↗
  • Temperature regulationI get these crazy weird hot flashes that make me feel like I'm going to pass out In context ↗
  • Brain fogdizzy/foggy feeling In context ↗
  • Breathlessnesshave to use an inhaler because I felt like I couldn't get a good breath In context ↗

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