Long COVID
Mild → much betterIll 3 years before improving or writingNeeds ongoing treatment
Long COVID with pneumonia and blood clots, now much better with walking and pacing
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
My long covid was manageable until now.
In context ↗ - At worst: Mild
I haven’t weightlifted since July 2021. Had covid pneumonia in august ‘21. I can only walk right now.
In context ↗ - Now: Much better
Doing pretty good cause it’s summer :) I’ve managed a routine of weightlifting twice per week.
In context ↗ - Began after: COVID
Tested positive on august 2nd.
Read from 116 of their posts and comments; links to the 56 this page draws on
- Jan 2024
- Sep 2022
- Aug 2026
- Mar 2023
- Sep 2022
- Nov 2021
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- Nov 2022
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Summary
Zephyr 40750 got long COVID in August 2021 with pneumonia, blood clots and a month in hospital. He improved gradually over about three years, crediting daily walking and pacing, and reached 80-95% of normal in warm months while winters and stress set him back. Boosters cost weeks to months, and a January 2024 reinfection set him back for months; a 2025 reinfection was still unfolding. A 2024 stress crash lasted three months. By summer 2026 he was doing pretty well, lifting weights twice a week.
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What they tried
What they credit
Also tried
dairy-free elimination diet· Helped a lotPPIs (acid reducers)· Helpedantihistamines (double dose, azelastine nasal spray, Zyrtec)· Helpedantihistamines (double dose, azelastine nasal spray, Zyrtec)· Helpedmelatonin· Helped · wore offBrio Ellipta (maintenance inhaler)· HelpedCBD oil (Charlotte's Web)· Helpedvitamin B12 supplement and B-complex· Helpedvitamin B12 supplement and B-complex· Helpedvitamin d3 (with k2)· Helpedvegan algae oil omega 3· Helpedpreservative-free saline eye drops· Helpedstretching· HelpedL-Lysine· Helpedtaurine· Helpedlight weightlifting once per week· Helpedcreatine· Helpedforcing myself to focus on reading more· Helpednasal sprays· Helpedmagnesium· Helpedblack cumin· No changeantibiotics· Worseantifungal medication· Worsevalerian root· Worsealbuterol inhaler· WorseSingulair (montelukast)· Worseintermittent fasting and cutting carbs· WorseCoQ10· Worseprobiotic· WorseNAC· WorseCOVID vaccination as treatment· Worseanticoagulant· Not saidIVC filter· Not saidmax strength mucinex· Not saidFlu vaccine· Not said
Their words about each treatment
- PPIs (acid reducers) · Helped
I had to try 3 or 4 before I found one that helped me.
In context ↗ - dairy-free elimination diet · Helped a lot
My esophagus was in significance better shape and below the threshold for alarm.
In context ↗ - antibiotics · Worse
Day 39 developed terrible hives from one of the antibiotics I was on.
In context ↗ - antifungal medication · Worse
one of the antifungal meds I was on screwed up my liver enzymes too.
In context ↗ - anticoagulant · Not said
I was on an anticoagulant for 6 months.
In context ↗ - IVC filter · Not said
Eventually got transferred to a better hospital where I had an IVC filter installed.
In context ↗ - antihistamines (double dose, azelastine nasal spray, Zyrtec) · Helped
I sleep better when I’m on an antihistamine, too.
In context ↗ - melatonin · Helped
My saving grace is CBD oil and 1mg melatonin as needed.
In context ↗ - valerian root · Worse
I got horrific dreams the few times I’ve tried that.
In context ↗ - albuterol inhaler · Worse
I had to minimize my usage of my albuterol inhaler for a short time as well as it is a stimulant.
In context ↗ - Brio Ellipta (maintenance inhaler) · Helped
I’m now up to Brio Ellipta which works for the most part.
In context ↗ - daily walking · Helped
I credit taking regular walks as often as possible with helping my situation.
In context ↗ - CBD oil (Charlotte's Web) · Helped
The thing that works best for me is charlottes web cbd oil 50mg or 60mg.
In context ↗ - vitamin B12 supplement and B-complex · Helped
Omega 3’s, vitamin d3, and b12.
In context ↗ - vitamin d3 (with k2) · Helped
I’ve been taking d3/k2 since before covid.
In context ↗ - vegan algae oil omega 3 · Helped
I started that and my dry eye issue has gone away.
In context ↗ - preservative-free saline eye drops · Helped
800mg of omega 3’s and basic saline eye drops fixed my dry eye.
In context ↗ - Singulair (montelukast) · Worse
It made me depressed when I tried it after Covid.
In context ↗ - intermittent fasting and cutting carbs · Worse
Post Covid, I have tried fasting and cutting carbs. My body does NOT like it right now.
In context ↗ - stretching · Helped
I find walks followed by stretching has helped considerably.
In context ↗ - L-Lysine · Helped
If you’re getting canker sores, take L-Lysine supplements. They’re the only thing that ever worked for me.
In context ↗ - taurine · Helped
I take a Taurine supplement (500mg) and it helps me a lot.
In context ↗ - CoQ10 · Worse
CoQ10 actually gives me heart palpitations (which is the opposite of what it’s supposed to do)
In context ↗ - probiotic · Worse
I had a probiotic cause this as well. Every time I took it I’d be jolted awake every time I was dozing off.
In context ↗ - NAC · Worse
As I sit here with worsening breathing after taking 600mg of NAC.
In context ↗ - light weightlifting once per week · Helped
I was able to weight lift last year one day per week. ... Felt awful the first 2 weeks but slowly gained back some strength.
In context ↗ - pacing · Helped
Pacing helps me a lot.
In context ↗ - creatine · Helped
On 5g, as needed, it helps me on brain fog days.
In context ↗ - forcing myself to focus on reading more · Helped
Mine has improved since getting more active as well as forcing myself to focus on reading more.
In context ↗ - max strength mucinex · Not said
I use max strength mucinex (plain, not decongestant) as needed
In context ↗ - nasal sprays · Helped
I take 2 nasal sprays as prescribed and that helps dry things up.
In context ↗ - black cumin · No change
Haven’t noticed any benefits.
In context ↗ - warm, sunny weather and travel to a warmer climate · Helped
Soaking up the sun and breathing ocean air is like flipping a switch for me.
In context ↗ - magnesium · Helped
Magnesium supplements help too.
In context ↗ - time · Helped
Slowly improved year over year from 2021 to 2024.
In context ↗ - COVID vaccination as treatment · Worse
Vaccine boosters set me back for months every time.
In context ↗ - Flu vaccine · Not said
The flu shot had me under the weather for a few days.
In context ↗
Approaches: Exercise and activity · Mould avoidance · Pacing
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| August 2021 | COVID pneumonia with blood clots, ICU and a month in hospitalTested positive on august 2nd. Had 102 degree fever for 2 weeks, developed pneumonia on day 3. Was in the hospital on day 14.In context ↗ |
| September 2022 | walking daily; step count up to 9,000 a dayMy step count was stuck at 5-6,000 per day for months but have finally bumped up to 9,000 and seem to be handling it ok.In context ↗ |
| September 2022 | pushed walking to 10,000 steps a day and shut down after a weekI decided to push it to 10,000 per day. That lasted one week before everything shut down.In context ↗ |
| November 2022 | Moderna bivalent booster plus flu shotit destroyed me for a full 2 weeksIn context ↗ |
| summer 2023 | felt like a million bucks in summer; walked 10,000 steps easilyBy the end of summer I feel like a million bucks. I can walk 10,000 steps easily.In context ↗ |
| January 2024 | COVID reinfection with sinus infection and bronchitisI got this 2 weeks ago. This was my first Covid infection since delta. My long covid was manageable until now.In context ↗ |
| spring 2024 | back to working out; thought he was done with long COVIDI was doing amazing last spring/early summer. Thought I was done with LC. Was able to work out and everything.In context ↗ |
| late 2024 | life stress; longest crash, about three monthsThen life got extra stressful and I’ve been dealing with the longest crash I’ve ever had. (About 2 months now)In context ↗ |
| January 2025 | slowly improving, though winter is hardImproving but it’s hard to say for certain. I live in the Midwest. Winter kicks my butt in general.In context ↗ |
| October 2025 | stress; digressed through the yearThen life got stressful and I’ve digressed this year. Feel like I’m fighting everydayIn context ↗ |
| August 2026 | doing pretty good in summer; weightlifting twice a weekDoing pretty good cause it’s summer :) I’ve managed a routine of weightlifting twice per week.In context ↗ |
Adverse events
- Melatonin“Melatonin 1mg makes me sleepy for almost the entire next day.” In context ↗ Side effects
- Valerian“I got horrific dreams the few times I’ve tried that.” In context ↗ Side effects
- Vitamin B12“If I take that in the afternoon i experience insomnia.” In context ↗ Insomnia from treatment
- Melatonin“Even on 1mg, I experience wild dreams.” In context ↗ Side effects
- Probiotics and fermented foods“I had a probiotic cause this as well. Every time I took it I’d be jolted awake every time I was dozing off.” In context ↗ Heart rhythm problems
- Montelukast / Singulair“It helped a little at first. However, it’s known to cause depression. It put me in a bad state.” In context ↗ Mood or psychiatric effects
- Albuterol / salbutamol (Ventolin)“I had to minimize my usage of my albuterol inhaler for a short time as well as it is a stimulant.” In context ↗ Heart rhythm problems
- Creatine“I tried creatine recently and it coincided with the worst energy crash I’ve had in over 2 years.” In context ↗ Made symptoms worse
- Creatine“I keep trying creatine but somehow I end up crashing within a day or two of starting it.” In context ↗ Made symptoms worse
- Creatine“I do notice my hair thinning after use.” In context ↗ Side effects
- CoQ10 / ubiquinol“CoQ10 actually gives me heart palpitations (which is the opposite of what it’s supposed to do)” In context ↗ Heart rhythm problems
- Intermittent fasting“Post Covid, I have tried fasting and cutting carbs. My body does NOT like it right now.” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“As I sit here with worsening breathing after taking 600mg of NAC. ... I felt short of breathe for an entire day.” Made symptoms worse
- COVID vaccination as treatment“Vaccine boosters set me back for months every time.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got mine 6 days ago and I feel terrible. ... My energy has completely bottomed out.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got the booster (along with the flu shot… could be a factor) and it destroyed me for a full 2 weeks.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“3 years ago I got them both together and it wrecked me.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“The Covid booster made me feel odd for several weeks.” In context ↗ Made symptoms worse
- Flu vaccine“The flu shot had me under the weather for a few days.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Post-exertional malaise
My PEM is occurring without any exertion.
In context ↗ - Brain fog
My brain fog certainly comes and goes.
In context ↗ - Sleep problems
I tend to wake up super early and my brain just won’t shut up.
In context ↗ - Pain & fibromyalgia
My calves and shins have been horribly sore and stiff since covid.
In context ↗ - Gut problems
since having covid, I’ve been having a lot more gastro issues resembling my EOE issue
In context ↗ - Muscle weakness
Could barely hold my arms up I was so exhausted.
In context ↗ - Neuropathy & tingling
I’m feeling more tingling/numbness in my head, exhaustion, unsteadiness
In context ↗ - Anxiety & low mood
I think part of my issue is extreme seasonal depression.
In context ↗ - Mast cell (MCAS) & allergies
If I drank a glass of milk, my throat would be sore for a week or two
In context ↗ - Temperature regulation
My hands are always cold.
In context ↗ - Vision problems
I had dry eyes after covid.
In context ↗ - Hair loss
I do notice my hair thinning after use.
In context ↗
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