Long COVID gut and dysautonomia symptoms, relapse after antivirals, microbiome protocol

Condition: Long COVID
At worst: Not stated
Ill before improving or writing: 3.5 years
Last post: Nov 2025

In their words

Condition: Long COVIDHave had LC for three years now. In context ↗
Now: RelapsedI've managed to get better multiple times, and each time something puts me back under. In context ↗
Began after: a vaccinationFor me, it was the vaccine that injured me. I (most likely) got PCVS. Symptoms came on shortly after taking it.

Read from 190 of their posts and comments; links to the 65 this page draws on

Summary

Cove 53170 has had long COVID for two years as of early 2024, mostly mild until nose surgery and antibiotics worsened symptoms; they later described IBS/gut dysbiosis, dysautonomia, anxiety, tremors and PEM. Antivirals caused a relapse, and a microbiome protocol helped by December 2024, restoring tolerance to some foods; desloratadine had briefly masked symptoms. Their posts stop in 2024 and don't mention 2025, Welchol or a mouldy home.

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What they tried

What they credit

MSC exosomes· Helped a lot · wore off KPV· Helped a lot · main Welchol (shoemaker protocol)· Helped a lot propranolol· Helped methocarbamol· Helped vitamin b12· Helped vitamin d3· Helped vitamin c· Helped HBOT· Helped ginger and artichoke supplements· Helped ginger and artichoke supplements· Helped carnivore diet· Helped desloratadine· Helped · main · wore off CereboPep (cerebrolysin)· Helped · wore off Thymosin-Alpha 1· Helped · wore off leaving moldy house· Helped

Also tried

water fasting· Helped · wore offPHGG, GOS and lactulose· Helpedmagnesium citrate· Helped intermittent fasting· Helped hydroxyzine· Helped Pepcid (famotidine)· Helped · wore off ketotifen· Helped · wore off valium· Helped · wore off nicotine patches· Helped acupuncture· Helped · wore off Xlear nasal spray· HelpedAlex Zaharakis microbiome protocol· Helped · wore offCPAP· Helped probiotics· No change cranberry extract· No change quercetin· No change Allegra· No change LDN· No change metformin· No change L-Theanine· No change NAC· No change Ashwagandha· No change inositol· No change digestive enzymes· No change TENS unit and Rezzimax· No change breathwork and meditation· No change sauerkraut· Worse berberine· Worse Beta 1,3/1,6 Glucan· Worse elemental diet· Worse Acyclovir· Worse Zyrtec· Worse Amitriptyline, Nortriptyline, and some SSRIs· Worse Amitriptyline, Nortriptyline, and some SSRIs· Worse Lithium Orate· Worse cannabis· Worse BPC-157· Worse Linzess· Worse Testosterone· Worse Sinus, jaw and tonsil surgery· Worse Cephalexin· Much worse Brivudine· Much worse Shen Ling Bai Zhu San· Not said Lactoballicus Sakei· Not said DAO supplements· Not said Histamine Reprieve· Not said pacing· Not said

Their words about each treatment

water fasting · HelpedI ended up fasting for about four days and at the time a lot of my symptoms went away. In context ↗
propranolol · HelpedOnly propranolol and methocarbamol helped. In context ↗
methocarbamol · HelpedMethocarbamol has helped, however, with symptom management. In context ↗
vitamin b12 · Helpedtake care of the anxiety and other symptoms with propranolol, methocarbamol, and vitamins b12, c, and d3 In context ↗
HBOT · HelpedI just finished my 5th session and I thought it helped quite a bit In context ↗
probiotics · No changethe few probiotics that I have taken don't seem to be doing anything In context ↗
sauerkraut · WorseSauerkraut fucked me up. In context ↗
PHGG, GOS and lactulose · HelpedSlowly got better with the bloating In context ↗
berberine · WorseI started taking berberine and cranberry extract recently to try to bring down that bacterial strain, and maybe that's what slowly down my motility further - bacterial die out. In context ↗
cranberry extract · No changeI'm taking 420mg a day - and I have no reaction that I can see to that. In context ↗
ginger and artichoke supplements · HelpedYes, but with iVtamin C Ascorbate + pure Magnesium Citrate, Fennel seeds, Artichoke Extract, Ginger, Bifdo HN019. Helped. In context ↗
Shen Ling Bai Zhu San · Not saidI was taking Shen Ling Bai Zhu San. In context ↗
Beta 1,3/1,6 Glucan · WorseI already saw Glucan 1,3/1,6 and had horrible anxiety reactions. In context ↗
magnesium citrate · HelpedOnly magnesium citrate helps. In context ↗
quercetin · No changeI take Quercetin at 2k a day, and it doesn't do anything for me. In context ↗
carnivore diet · HelpedWhen I eat meat only with little carbs I tend to feel better, and all those symptoms go down. In context ↗
intermittent fasting · HelpedEach time I fast I feel better In context ↗
elemental diet · WorseI held out off after two drinks; due to intense anhedonia and anxiety I thought it'd be better to stop In context ↗
Cephalexin · Much worseI had to take Cephalexin for my surgery - regret that deeply as it took my long covid to moderate conditions, where I can't eat anything. In context ↗
Brivudine · Much worseThe one time I tried brivudine for 7 days was the second biggest relapse I've ever had in my LC journey - backtracked months of progress in those days. In context ↗
Acyclovir · WorseI noticed my EBV levels went up on Acyclovir In context ↗
MSC exosomes · Helped a lotthe MSC exosomes took me from 55% to 85% In context ↗
desloratadine · Helpedthe first week on it was great. Masked almost all my symptoms instantly. In context ↗
Zyrtec · WorseThe latter made me way too tired, drowsy, and in a way where I couldn't sleep. In context ↗
Allegra · No changeThe prior didn't do much? In context ↗
hydroxyzine · HelpedI tried hydroxyzine and it works nicely but it only lasts like 4-5 hours. In context ↗
Pepcid (famotidine) · HelpedI had to start taking H2 antihistamines at night, at 20mg In context ↗
ketotifen · Helpedat .75mg I think I started to have some benefits In context ↗
LDN · No changeAdding in LDN so far also hasn't seem to do anything except give me constipation. In context ↗
valium · HelpedValium brings down all my symptoms - including fatigue. In context ↗
nicotine patches · HelpedI get a lot of benefit from nicotine patches, but I get really bad withdrawal symptoms from getting off nicotine patches In context ↗
metformin · No changeI've taken metformin before. It didn't help. In context ↗
Amitriptyline, Nortriptyline, and some SSRIs · WorseI've tried taking Amitriptyline, Nortriptyline, and some SSRIs and they all made me feel horrible. In context ↗
Lithium Orate · Worsewhenever I take it - particularly at anything greater than 1mg - it makes my anxiety worse. In context ↗
L-Theanine · No changeL-Theanine doesn't help me much. In context ↗
NAC · No changeI've taken NAC + L-Theanine + Glycine for anxiety. Doesn't seem to help. In context ↗
Ashwagandha · No changeAshwagandha doesn't do much for me, unfortunately. In context ↗
cannabis · WorseI've tried cannabis. It helped at first but it no longer does. It makes things worse. In context ↗
acupuncture · HelpedAcupunture no longer helps me, nor Inositol. In context ↗
Xlear nasal spray · HelpedRampantly brought my symptoms down In context ↗
Lactoballicus Sakei · Not saidI also took Lactoballicus Sakei. In context ↗
BPC-157 · WorseI've done direct infusions with BPC-157 as a peptide and got some pretty nasty reactions regardless. In context ↗
KPV · Helped a lotThe peptide KPV in particular has been great. In context ↗
CereboPep (cerebrolysin) · HelpedTook it for about a month with Thyomsin-Alpha 1, and noticed some pretty big important while on it. In context ↗
Alex Zaharakis microbiome protocol · HelpedIn only those six weeks, I had dramatic improvements. In context ↗
Welchol (shoemaker protocol) · Helped a lotonce I introduced Welchol from the shoemaker protocol, I had maaaaajor relief. In context ↗
leaving moldy house · HelpedI left my house which was moldy. In context ↗
CPAP · HelpedThe CPAP has helped the most for my blockage. In context ↗
Linzess · Worsewhen I took Linzness it flared up my anxiety again In context ↗
DAO supplements · Not saidI'm not sure DAO supplements helped at all, either. In context ↗
digestive enzymes · No changeI have found digestive enzymes didn't help much. In context ↗
Histamine Reprieve · Not saidIt doesn't really help too much. Maybe it does. In context ↗
TENS unit and Rezzimax · No changeTENS unit, Rezzimax made things work, and breathing exercises only help a tiny bit. In context ↗
breathwork and meditation · No changemeditation/breathe work doesn't seem to do anything anymore In context ↗
pacing · Not saidI pace and do anti-histamines In context ↗
Testosterone · Worsewhenever I did testosterone injections they made me feel worse In context ↗
Sinus, jaw and tonsil surgery · WorseI did surgery for my nose thinking that was the problem during covid. Now I'm moderate-severe, and I was mild and almost out. In context ↗

Approaches: H1 antihistamines · Hyperbaric & oxygen · Beta-blockers · Diet · Mould avoidance · Biologics & antibodies · Other drugs and medicines · Peptides · Supplements

Their path

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table

When	What happened	Where they were
2022	long COVID onset after COVID vaccination; mild for two yearsAt first I was mild for two years In context ↗	Mild
December 2023	nose surgery with antibiotics; slid into moderate LC with IBS, dysautonomia and MCASthis put me into moderate LC with IBS, Dysautonomia, and MCAS In context ↗	Moderate
June 2024	antiviral (brivudine) wrecked their gutThe one time I tried brivudine for 7 days was the second biggest relapse I've ever had in my LC journey In context ↗	Moderate
2024-12-10	microbiome protocol plus twice-daily desloratadine; could eat a variety of foods againI even was able to exercise by December. In context ↗	Mild
2025-01	flu-like viral illness; anxiety and food intolerance returnedSome sort of flu, or virus, and it caused a really bad relapse. In context ↗	Moderate
2025-02	crash after a 15-minute swim; could not walk or leave the house without anxiety and brain fogNow I can't walk, or do anything without anxiety coming in, brain fog coming in. In context ↗	Severe
2025-03	three acute infections plus benzo taperI just keep getting worse and worse. In context ↗	Severe
2025-07	Welchol from the Shoemaker protocol gave major reliefWell, once I introduced Welchol from the shoemaker protocol, I had maaaaajor relief. In context ↗	Moderate
2025-11	identified mould toxicity in their home; detox helped mostIt was preventing me from getting better for 3 and a half years. In context ↗	Moderate

Adverse events

Extended water fasting (3+ days)“my blood pressure was getting higher” In context ↗ Side effects
Cephalexin (Keflex)“it took my long covid to moderate conditions, where I can't eat anything.” In context ↗ Made symptoms worse
Linaclotide (Linzess)“when I took Linzness it flared up my anxiety again” In context ↗ Mood or psychiatric effects
Hyperbaric oxygen (HBOT)“my ears feel a bit wonky/tiny bit of a pain” In context ↗ Side effects
Probiotics and fermented foods“Sauerkraut fucked me up.” In context ↗ Made symptoms worse
Brivudine“The one time I tried brivudine for 7 days was the second biggest relapse I've ever had in my LC journey” In context ↗ Made symptoms worse
Beta-glucans“had horrible anxiety reactions” In context ↗ Mood or psychiatric effects
Cranberry“the last time I took it it was a pretty intense reaction.” In context ↗ Side effects
“that gave me intense anxiety, and headaches.” In context ↗ Mood or psychiatric effects
Vitamin C“Vitamin C even makes it hurt to pee.” In context ↗ Other
“the more I do it, the worse I feel.” In context ↗ Made symptoms worse
Cetirizine (Zyrtec)“The latter made me way too tired, drowsy, and in a way where I couldn't sleep.” In context ↗ Side effects
Probiotics and fermented foods“It just increased everything slightly for me: anxiety, fatigue, neuropathy, etc.” In context ↗ Made symptoms worse
Probiotics and fermented foods“even plantarum does (it did for me at first)” In context ↗ Side effects
Famotidine (Pepcid)“I tried not taking the H2 for one night, and I felt the repercussions till... right now.” In context ↗ Withdrawal problems
Amitriptyline (Elavil), Nortriptyline (Pamelor)“I've tried taking Amitriptyline, Nortriptyline, and some SSRIs and they all made me feel horrible.” In context ↗ Made symptoms worse
Ketotifen (Zaditen)“its just kicking my ass in terms of this weird drowsiness.” In context ↗ Side effects
Nicotine patches“I get really bad withdrawal symptoms from getting off nicotine patches” In context ↗ Withdrawal problems
Diazepam (Valium)“I realized I'm getting dependent on valium so I tried weening off, but my condition becomes less stable” In context ↗ Withdrawal problems
Diazepam (Valium)“I know the valium is definitely making me feel worse because it keeps sedating it and making me feel weaker” In context ↗ Made symptoms worse
Diazepam (Valium)“having LC and Akathisia seems like a fate worse than death.” In context ↗ Mood or psychiatric effects
Metformin“I no longer take it because of the negative impact on the microbiome.” In context ↗ Gut side effects
Cannabis (THC, marijuana)“It makes things worse. It's like adding more anxiety and brain fog.” In context ↗ Made symptoms worse
Methocarbamol (Robaxin)“Full internal vibrations and VIOLENT panic attacks.” In context ↗ Withdrawal problems
Testosterone“whenever I did testosterone injections they made me feel worse” In context ↗ Made symptoms worse
Low-dose naltrexone“LDN constipated me immensely and I can't take it.” In context ↗ Gut side effects
Lithium orotate (low-dose)“it makes my anxiety worse.” In context ↗ Mood or psychiatric effects
BPC-157“I've done direct infusions with BPC-157 as a peptide and got some pretty nasty reactions regardless.” In context ↗ Side effects
Sinus, jaw and tonsil surgery“I did surgery for my nose thinking that was the problem during covid. Now I'm moderate-severe, and I was mild and almost out.” In context ↗ Made symptoms worse
Famotidine (Pepcid)“Anytime I tried it made my symptoms horrifically worse - for like a month and a half when I tried. Horrible anxiety, tremors, brain fog.” In context ↗ Withdrawal problems

Symptoms mentioned

Brain fog Gut problems Headaches & migraine Light & noise sensitivity Mast cell (MCAS) & allergies Muscle weakness Neuropathy & tingling POTS & dysautonomia Pain & fibromyalgia Post-exertional malaise Sleep problems Temperature regulation

Their words about their symptoms

Post-exertional malaiseStill got some gut issues, though and all the more major things: PEM, sleep apnea, tremors, etc. In context ↗
Brain foganhedonia coupled with brain fog constantly In context ↗
POTS & dysautonomiathis put me into moderate LC with IBS, Dysautonomia, and MCAS In context ↗
Mast cell (MCAS) & allergiesUnfortunately, I also have IBS and MCAS. In context ↗
Sleep problemsmy anxiety ramped up, I was getting worse sleep In context ↗
Pain & fibromyalgiamy symptoms were mostly mild (Fibromyalgia, neuropathy, fatigue, anxiety) In context ↗
Headaches & migraineI would get horrible anxiety followed by atomic migraines and nausea. In context ↗
Gut problemsI have IBS, my digestion is not working normally, and I have constipation In context ↗
Light & noise sensitivityneuropathy, headaches, sound sensitivity fatigue, dread, tingling, internal tremors In context ↗
Neuropathy & tinglingFatigue, PEM, tremors, anxiety/dread, brain fog, sleep apnea, neuropathy, etc. In context ↗
Temperature regulationI also get a bit cold in the mornings, and hot in the evenings. In context ↗

Long COVID gut and dysautonomia symptoms, relapse after antivirals, microbiome protocol

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What they tried

What they credit

Also tried

Their path

Adverse events

Symptoms mentioned

Ask Miruvor AI

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What they credit

Also tried

Their path

Adverse events

Symptoms mentioned

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